I got THE call from Northwestern today. Betsy the study nurse called and wanted to go over my testing schedule for Friday. She also suggested that I bring any questions to Dr. Burt for our appointment on Wednesday because it may be my last chance before the transplant.
I asked her about next steps and she said that it will take about 2 weeks for my test results to come back and they need to submit to insurance and it can take up to 2 weeks for insurance approval. She also said I will need to do the washout for the Aubagio and I asked her if that’s inpatient or just by mouth and she said I will have to drink stuff for 11 days and then they will do labs to make sure it’s out of my system….but I may have to do it again. I asked her why and she said some people have problems tolerating the washout drink but I told her I will do it the first time and plug my nose and do whatever I have to do to get that stuff down. She said after that they will schedule my chemo and mobilization and it’s looking like May because Dr. Burt is out of the country on vacation for the month of April and he can’t have anyone in process at that point.
I am truly grateful. 🙂